Böcker av Carolyn Ellis

A poignant autoethnography that reflects back forty years later on loving someone chronically ill.

When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became disabled and immobile, these two partners fought to maintain their love and to live a meaningful life. This memoir is about what it means to be involved, and in love, with someone chronically ill.

Gives useful strategies for conducting a study, including the need for introspection, the struggles of the budding ethnographic writer, the practical problems in explaining results of this method to outsiders, and the moral and ethical issues that get raised in this form of research.