Böcker av Europe Rare Cancers Europe

RARE CANCER AGENDA 2030Ten Recommendations from the EU Joint Action on Rare Cancers1. Rare cancers are the rare diseases of oncology2. Rare cancers should be monitored3. Health systems should exploit networking4. Medical education should exploit and serve healthcare networking5. Research should be fostered by networking and should take intoaccount an expected higher degree of uncertainty6. Patient-physician shared clinical decision-making should beespecially valued7. Appropriate state-of-the-art instruments should be developed inrare cancer8. Regulation on rare cancers should tolerate a higher degree ofuncertainty9. Policy strategies on rare cancers and sustainability of interventionsshould be based on networking10. Rare cancer patients should be engaged