Creutzfeldt-Jakob Disease. One case in a million

When illness enters a person's life, he does not ring the bell, does not knock on the door, does not ask for permission. Just go in. It is silent and discreet, but then suddenly it explodes, devastates, destroys and dusts everything it encounters on its way. A phenomenon of uncontrollable and certainly unpredictable nature. A research-analysis on the onset, progression and evolution of the rare Creutzfeldt-Jakob disease. A real testimony lived and seen through the eyes of a daughter, about her father's illness and the tangible consequences that have affected and marked her family.The transition from continuous and uninterrupted care to eternal detachment Death and the multiplicity of physical, emotional reactions , spiritual. Mourning and the pain processing process, of the reactions experienced in saying goodbye to a dear person. There are those who manage to manage a changed life with their own strengths and those who remain lost and discouraged; those seeking the help of a psychologist, a psychiatrist or a priest and those who heal the wounded heart by sharing the offer with other people suffering from similar pains. Many people resort to calm or anxiolytic to reduce anxiety, to sleeping pills to be able to sleep, to antidepressants to face the darkest moments.The decision to write.A message of hope, the opening of life beyond pain and death. disease, adopt communication strategies in the rare unknown disease, psycho-physical stress, resilience as 'added value', the disease as a resource.
Immense pain and inner peace, life and death embraced together that transcend all that we can understand on the ground: the cold writing of clinical reports, affection, anger, dedication, hope, acceptance and death-rebirth. I have decided to write.